My Journey
Are you feeling
itchy now? To be honest, I am habitually scratching my body while writing this.
Indeed, it is itchy, unpleasant and embarrassing. Although my eczema has
subsided for some time after a series of treatments and preventions, there is
still a possibility that it will flare again. Unfortunately, I have to live
with it for the rest of my life. I am one of the 20% of patients worldwide who succumbs
to atopic dermatitis. Most of the atopic eczema conditions improve by the time
children reach adolescence. Unluckily, I did not outgrow it. My eczema persists
into my adulthood and it still flares periodically. I am 25 years old. Feeling
disconcerted and self-conscious of my skin condition, it is difficult for me meeting
friends. Controlling eczema from
spreading and deteriorating is tough and tiring as well.
When I was in
primary school, I was just like others with smooth healthy skin, and was active
and energetic. No sign of eczema or any skin disorder appeared until the year I
entered secondary school, Form 1. Out of the blue, my inner side of my elbow
and knee started to get itchy uncontrollably. The moment I rubbed those affected
parts, small prickly red bumps appeared. They were so irritating that I kept
rubbing and pinching them. The small bumps turned reddish and were spreading to
back of my hands and fingers. The more I rubbed them, the itchier they were, creating
red patches. I strived hard to cover those parts by wearing long sleeves and
bending my arms to avoid people seeing those rashes. The affected parts became very
dry after a few weeks later and they looked pale and wrinkly. Eventually, my
parents brought me to consult the skin specialist and I was diagnosed to suffer
from atopic eczema. In fact, a few of my close relatives have allergies,
rhinitis and asthma. Atopic eczema falls into the same category as the
aforementioned allergic conditions. I was then given a bunch of creams and some
antihistamines. Essentially, creams and antihistamines are the only two things
that a doctor will normally prescribe to an eczema patient. Atopic eczema is
not curable. Creams and antihistamines are remedies to temporarily suppress
eczema flare-up. With those medicines, after a few months, my rashes subsided
and my dry skin condition returned to normal. During eczema flare-up, I was
struggling to control itching and to have good sleeps; I missed swimming
classes, reduced outdoor activities, wrapped affected parts with cloths to
prevent me from scratching during sleep at night, prayed hard to God for speedy
recovery and endeavored to concentrate in my studies.
My skin rashes
and itching disappeared for a few years. Nonetheless, from the time I graduated
from high school to my first university year of study, my eczema did flare but
they were mild and stayed just for a few days to a week or so. In 2008, I
started my degree study in New Zealand and my eczema flared badly. Dry skin and
continuous itching persisted throughout my four-year study there. The two main
reasons it flared so easily and persisted for so long over there were dry
weather and high-stress lifestyle. These two reasons were the killer to my
sensitive skin. Christchurch is the driest city in New Zealand and it was where
I pursued my engineering degree study. Rain was rare in Christchurch and the
lack of moisture had made my skin even drier and flaky, increasing the tendency
to scratch. Moisturizing became part of daily routine. I applied thick layers
of moisturizer in the morning and at night before sleep. However, it became
worse when I entered second year of study whereby my skin became so sensitive
that I would scratch them during sleep every day. Rashes enveloped my whole
body with some even oozing and weeping as a result of excessive scratching. Itching was intense, especially at night which
led to insomnia. Coupled with my stressful
engineering assignments and projects, my eczema got worse. I would have my hands
scratching almost every part of my body trying to figure out solutions to my
engineering problems. Itching has tremendously distracted my attention to
concentrate in my studies. I would try to avoid siting at my desk too long
doing assignments, watching movies or even playing games. Instead, I would
force myself to have a walk outside the house and engage in chitchat with my neighbors
and friends or even stroll in shopping malls. Involving in social activities
would be the only way to make me more conscious of my scratching act and would deter
me from touching my skin. In winter, as weather turned dry and cold, moisturizing
alone would not help reduce my scratching. As the cold weather set in, my skin
was chapped and dehydrated. I had to take a few antihistamines every night to
stop me from scratching unconsciously during sleep. The chilly weather has
forced me to be in bed most of the time with thick blanket covered in the hope
of getting sweat. Sweating is uncomfortable but it would slightly help my skin
stay hydrated in addition to the creams applied. Without the creams, when the
sweat dried and evaporated, the skin would be even drier. I would take non-drowsy
ones in the morning while drowsy ones before sleep. Over the winter months, my
skin had become so flaky, crusty and scaly. My skin condition has demotivated
me to meet friends and attend any public event. I would limit my outdoor sport
activities to prevent me from being too exhausted, further aggravating my
condition. I used steam humidifier to keep my room damped but the
uncontrollable steam temperature and humidity had made me feel suffocating. Every
night, I listened to some soothing music, particularly New Age and Ambient
music which helped manage my stress and promote relaxation. Guidance and advice
from parents, doctor and close friends were building my courage to face my skin
condition.
Feeling pain was the only way stopping me from
scratching affected part. The affected
parts of my skin (waist area, neck, face, inner side of elbow and knee and
back) would recover slowly and the skin started to peel excessively. My bed,
chair and sofa were filled with my dead peeled skin. Worse, the dead skin
became the source of food for my new enemy – dust mites. Recently, I had a blood
allergy test indicating that my IgE level to dust mite allergens is so high
that it surpasses the upper test limit. I never knew that for four years during
my study there whereby dust mites (particularly their eggs) were the ones
inducing my itch and triggering my non-stop scratching during sleep every day. I
went to see the GP and skin specialist almost every few months in New Zealand
whenever I had a flare-up. Steroids, antihistamines and aqueous / fatty creams
were the medicines I had been using to treat my eczema flare-up.
I came back to
Malaysia after my university graduation last year and my skin has just returned
to normal recently. I was recommended by an allergy specialist to do immunotherapy
to combat dust mite allergy for three years. However, I stopped doing it as it was
expensive and I did not see any significant improvement after nine months of therapy.
My skin recovers fast under Malaysia damp tropical environment. My skin is
moist and hydrated naturally. Also, I try reducing my stress level and apply
moisturizer every day after shower and before sleep. Now, my skin has turned healthy
and itching has stopped for a few months already. However, my skin is now a
little thinner and more sensitive due to topical steroid application for the
past few years. I have reduced the dependency of taking antihistamines as well.
However, extreme sweating and unnecessary high stress will still lead to
continuous scratching but I have formulated a series of ways to control itching
and to prevent any flare-up in future. My skin now is moist and smooth. I am
back to my daily routine with daily precautions and practices to take care of
my sensitive skin.
Since you mentioned house dustmites, do you know you can remove dustmites effectively from your mattress by using an air and room cleaning system which is available in the market.
ReplyDeleteMichael
Hi Michael, I'm aware of that.. Does that system really kill the dustmites and their feces? I always clean my bedroom whenever i spot any dust sticking on my bed. Also, I use a kind of mattress protector that will reduce the exposure...
ReplyDeleteYes, this system can remove and reduce dustmites, dustmites droppings, dead skin cells, dust in the mattress. I have been using it for 13 years.
ReplyDeleteHi, how does the cleaning system work? Any recommended brand or model?
ReplyDeleteI suppose you would have heard or come across several systems such as Hyla, Rainbow, etc.,and works by using a water-bath filtration system, forcing the air through a water bath, to trap dust, allergens, dirt and dust mites safely, ensuring only fresh, clean water washed air is returned back into the room.
DeleteHi Yi, I'm so glad that you are finding some relief. I totally relate to your story. I have had bouts of debilitating eczema these past five years. It started 6 months after moving from CA to Virginia. I always had some here and there but never as life interfering as these past few years. Sometimes I wonder about moving back to CA but my husband and I have invested much of our lives here in VA and I am afraid if we move that there is the possibility that a new environment may not solve the problem. It's frustrating to have it under control most of my life to now have to work so hard to make it bearable. I have to take antihistamines, light treatments, and occasional steroids to manage it. I do use the special mattress and pillow covers along with regular dusting and use of hepafilters in my office and bedroom.
ReplyDeleteHi Annette, I absolutely understand your situation. Coping with this undesirable skin problem is challenging and tiring. In addition to taking antihistamines and applying moisturizers, the humid environment in Malaysia has helped a lot in relieving my dry skin. Nice meeting you. I hope you would manage your eczema well and find some relief as well.
ReplyDelete